Supported a National Meeting of Ukrainian Medical Geneticists.

The BD program sponsored a meeting with Ukrainian Medical Geneticists with two purposes in mind: to induce potential partners to adopt BD surveillance in other regions and to enroll volunteers to develop informational materials for a Ukrainian version of the International Birth Defects Information System (IBIS). The participants enthusiastically volunteered to develop Fact Sheets for the Ukrainian web IBIS site.

National Meeting with Medical Geneticists

Information resources donated by U.S. colleagues

Linked the Program with U.S. counterparts.

Our program enjoyed the unstinted support of U.S. experts. The Center for Disease Control coordinator of US BD Surveillance systems, Dr. L. Edmonds, has visited Kyiv and Rivne on multiple occasions and has contributed valuable materials and expertise to facilitate implementations. Valuable donations were welcomed from Drs. V. McKusick and R. Stevenson (See Photo Above). A significant number of world experts are interested in establishing partnerships with Ukrainian decision makers. There is critical and urgent interest in promoting procedures that are capable of preventing 80% of spina bifida in Ukraine by folic acid supplementation or dietary fortification.

Ukrainian Program Leaders meet Dr. L. Edmonds (second from left), National Coordinator of Birth Defects Surveillance Programs in the U.S.

Ukrainian Program Leaders meet U.S. birth defects prevention experts; Folic Acid experts (seated), Drs. L. Sever and S. Bailey

Linked the UA with International Parental Support Organizations.

The March of Dimes, the World Alliance for the Prevention of Birth Defects and the European Alliance of Parental Support Groups have met in Kyiv with Ukrainian Maternal Child Health Experts. Further exchanges are programmed for 2000.

Transferred Digital technology and know-how to two major medical centers in Ukraine (Diagnostic Center of Rivne and the Lutsk Regional Childrens Medical Center).

The digital images illustrating this report were obtained, designed, edited and published by Ukrainian trainees and partners.

This ends the descriptive and illustrated (Part 1) of the Progress Report. Technical and quantitative program components are reported in Part 2.

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21/January/2002 dc