Created two core, oblast-based, multi-disciplinary Ukrainian teams linking neonatology, pediatrics, medical genetics, and informatics to interact with raion (county) based health care teams.

The U.S. trained Ukrainian team leaders have trained 15 other BD team members and raion-based clinicians. Each of two BD team consists of 5 or more neonatologists and 5 or more medical geneticists. In addition, each BD team engages 2 or more computer information specialists charged to train and supervise those who will use computer BD databases.

Created two Ukrainian-American BD Centers.

Ukrainian - American BD Centers in Lutsk and Rivne were formally inaugurated by local authorities. The Directors are Drs. T. Vihovska (Neonatologist) and L. Yevtushok (Medical Geneticist). Their specialties underscore the strategy of close partnerships of neonatology with medical genetics. In both instances, the Governors expressed the view that these centers, in addition to providing health care, will also serve as demonstration and training sites of national significance.

Program Surveillance Director (left) and Program Medical Director (right) - Drs. T. Vihovska, (Neonatologist, Lutsk) and L. Yevtushok (Medical Geneticist, Rivne).

Inauguration of the Ukrainian-American Birth Defects Center in Rivne - Drs. O. Hnateiko (Director of the Medical Genetics Center in Lviv) with L. Yevtushok (Project Medical Director)

Expanded BD Surveillance to include registry of all newborns.

Oblast authorities suggested that the BD Surveillance System be expanded to accommodate the registration of all newborns. This suggestion was accepted. The BD registration forms were modified and the BD database development plans were adjusted accordingly.

Improved service capacity for newborns with BD.

The Program has successfully changed the BD medical care paradigm. Medical geneticists, neonatologists, and pediatricians working together have improved the capacity and effectiveness of the target area BD care systems. Medical geneticists supply consultation on causes (etiology) to the neonatologists who refine diagnosis and frame early intervention. Medical geneticist form the core of multidisciplinary teams assisting pediatricians who serves as the "medical home" for children with BD.

Created a National Multidisciplinary team of experts on BD Surveillance, Care and Prevention.

A national multidisciplinary team was created by the formation of the Board of the Ukrainian Alliance for the Prevention of BD. This team (and others like it which will be formed in the future) serve to catalyze interactions of raions and oblasts with the Ministry of Health and National or International organizations.

 
Planning training multidisciplinary activities. On the left (back row left) is Dr. I. Baryliak (President
of the UA and Director of the Medical Genetics Center of Kyiv) next to Dr. W. Wertelecki (Project
Director) interacting with BD Lutsk and Rivne teams. On the right is Mr. S. Lapchenko (Information
Officer) demonstrating to Mr. H. Shymonovych (trainee) electronic information resources

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21/January/2002 dc