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Ukrainian-American Birth Defects Program
Participation at the 8th European Symposium "Prevention of Congenital Anomalies" (Poznan, Poland)
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On June 9-11 in Poznan there was held the 8th European Symposium "Prevention of Congenital Anomalies" and the 20th Annual Meeting for the EUROCAT members. International Children's OMNI-Net Not-For-Profit Organization and Ukrainian-American Birth Defects Program were represented by the Program Director Professor W. Wertelecki (Alabama, USA), Medical Coordinator L. Yevtushok (Rivne, Ukraine), Surveillance Coordinator T. Vihovska (Volyn, Ukraine) and Coordinator of the Khmelnytsky OMNI-Center N. Zymak-Zakutnya (Khmelnytsky, Ukraine).
From left to right: Prof. W. Wertelecki, L. Yevtushok,
T. Vihovska |
At the conference epidemiology, prevention, diagnosis and genetic counselling of cases of congenital defects were discussed. A report by Professor Wertelecki was dedicated to the impact of resource centers on parental support groups creation and development in Ukraine. The distinctive feature of the OMNI-Center Network is that it has three components. It provides medical care, gives informational support and unites different parental organizations.
NTD poster. Click on the image
part to view in detail |
Great interest was awoken by the poster report "Prevalence of Neural Tube Defects in Western and Southern Regions of Ukraine" (prepared by the OMNI-Center Network team). The data presented on it demonstrated that the level of neural tube defects in Western and Southern regions of Ukraine is much higher comparing to the European data. It requires immediate actions in order to prevent the epidemic of spina bifida.
In the frames of the 8th European Symposium, the 20th Registry Leaders' Meeting was hold. At the 20th Registry Leaders' Meeting the participants discussed the following issues of development the EUROCAT Central Registry:
Doctor T. Vihovska made a report, in which she presented the Ukrainian-American Birth Defects Program, which is going to apply for EUROCAT membership.
Also Professor Pierpaolo Mastriacovo made a report about the perspectives and objectives of ICBDMS/ICBD and Professor Helen Dolk (EUROCAT Project Leader) shaped the perspective directions of EUROCAT development.
The members of the Ukrainian-American Birth Defects Program worked also in subgroup sessions as to the following topics:
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12/August/2005 sl
