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Ukrainian-American Birth Defects Program

Abstracts of the Reports of the UABDP Participants
of the 2-nd National Bioethics Congress

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October 1, 2004

Bioethical Aspects of Combination of Birth Defects Monitoring with Early Intervention Programs

Wolodymyr Wertelecki
Department of Medical Genetics
University of South Alabama (USA)

Ihor Barylyak
Scientific Center of Medical Radiology
Academy of Medical Sciences of Ukraine

Lyubov Yevtushok
Rivne Regional Clinical Diagnostic Center

Lyubov Yevtushok, M.D.
Reporter Dr. L. Yevtushok

Introduction by the Ukrainian-American Birth Defects Program of birth defects surveillance according to the international standards in some oblasts of Ukraine promotes membership of Ukraine in authoritative international organizations related to birth defects surveillance. This allows developing common approaches to birth defects diagnosis, care and prevention.

Created in 5 oblasts and Kyiv Informational Resource Child Development and Birth Defects Prevention OMNI-Centers are open for medical specialists, educational specialists and parents. They serve as a basis in improvement and increase of effectiveness of early intervention systems applied to children with special needs.

According to WHO data, 3% of children are born with mental disorders. In Ukraine there are more than 150 thousand children with limited abilities and also 100 thousand deprived of parental care children and orphans. Quite often mental and physical disorders originating in prenatal and perinatal periods are diagnosed untimely. In many cases children with diagnosed pathology do not have access to early intervention programs which breaks the main principles of bioethics.

However, it is undeniable that each child has the right to realize his (her) potential to the maximum. It is the direct duty of the society to realize this right.

The optimal solution is development of effective early intervention systems. Components of such systems are:

The collaboration between medical and educational specialists directed at the improvement of a child's life quality will be effective.

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22/November/2004 sl