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International Birth Defects Information Systems
Craniofacial Anomalies

International Birth Defects Information Systems

Craniofacial Anomalies
Craniostenosis Craniosynostosis

Topics: | Craniosynostoses |

Related Topics : | CATCH22 | Cleft Lip Palate | Crouzon S. | DiGeorge | Pierre Robin S. | Treacher Collins S. | Wolf Hirschhorn S. 4p- |

Service Related: | Support Groups | Professional Associations | Key Information Sources |

Languages: | English | Hungarian | Ukrainian |

The Cleft Lip, Palate, and Craniofacial Deformities
MAYO Clinic, 2007
The care of the patient born with complex facial deformities is one of the most challenging tasks in medicine. In the last decade, it has become increasingly apparent that these patients require an interdisciplinary approach covering the myriad functions of the head and neck along with the external form of the face itself …
The Cleft Clinic, as it is called for brevity's sake, is centered in the Division of Plastic and reconstructive Surgery and regularly includes specialists from:
Pediatric Plastic Surgery – Directors ... Otolaryngology ... Speech Pathology ... Orthodontics ... Psychology ... Genetics ... Pediatrics ... Oral Surgery ...

To the Personal Side of Craniofacial Differences
Craniofacial Anomalies Webring, March 18, 2002
Is dedicated to all of the people whose lives are affected by Craniofacial Disorders … We are starting out with just 15 disorders, so please feel free to e-mail me ...
Antley – Bixler Syndrome
Apert Syndrome
Baller – Gerold Syndrome
Carpenter Syndrome
Cranio – Synostosis
Crouzon Syndrome
Goodman Syndrome
Page 2
Jackson – Weiss
Langer – Geidon
Parry – Rombergs Syndrome
Pfeiffer Syndrome
Saethre – Chotzen Syndrome
Sagittal Synostosis
Stickler Syndrome
Treacher – Collins …

Society of Craniofacial Genetics
Society of Craniofacial Genetics, December 2006
Visitor Comments [for Professionals mainly]
Founded in 1975 to promote education, research, and communication in normal and abnormal development of the craniofacies ...

Society for Craniofacial Morphometry
Society for Craniofacial Morphometry, 2004
This society provides an organizational network for investigators … objective measurements of normal craniofacial morphogenesis methods to operationally define dysmorphology of the head and face.
Ours is an interdisciplinary group, including:
medical geneticists ... plastic surgeons ... neuroscientists ... anthropologists ... developmental biologists ... mathematicians ... statisticians

Children's Craniofacial Association
Children Craniofacial Association, 2007
Children's Craniofacial Association is a national, nonprofit organization, headquartered in Dallas …
What is a Craniofacial Difference? …
How Can You Help? …

Jeffrey Fearon, M.D., F.A.C.S.
Craniosynostosis is a medical term that literally means fused bones of the skull. It's a condition that some children are born with or later develop. The skull is abnormally shaped because of the fusion of skull bones …

Craniosynostosis And Positional Plagiocephaly Support ( C.A.P.P.S. )
Craniosynostosis And Positional Plagiocephaly Support, 2001
Craniosynostosis and Parents Support, Inc. is a national non profit organization established in 1999 and headquartered in Beaufort, South Carolina …

Brazilian Society for Research and Care on Craniofacial Rehabilitation Campinas

The Craniofacial Foundation of Arizona
Craniofacial Foundation of Arizona, 2007
… dedicated to provide financial and emotional support to craniofacial patients and their families, promote education programs to increase awareness about and acceptance of craniofacial conditions, and support research to improve methods of preventing, diagnosing and correcting craniofacial abnormalities. The Craniofacial Foundation of Arizona, established in 1990, …

Center for Craniofacial Development and Disorders (CCDD)
CCDD, Johns Hopkins University, June 4, 2007

Interactive atlas of congenital craniofacial malformations
Per Larsen, et al. University of Copenhagen
… A true 3D interactive atlas … The atlas is based on CT – data obtained in relation to the clinical treatment of the patients …

Craniofacial / Brain Disorders / Deformities
Birth Disorder Information Directory
Related Books (and links) …

Reconstruct a face
World Craniofacial Foundation, 2007

Correction of Isolated Craniosynostosis
Cedars - Sinai Medical Center ( CSMC ), 2006

J. Cary Moorhead, MD., Baylor College of Medicine, February 8, 2006

Texas Pediatric Surgical Associates

National Institute of Neurological Disorders and Stroke, February 12, 2007

Craniosynostosis Syndromes
Nathaniel H Robin, MD et al., GENE Clinics, January 9, 2006
Acrocephalosyndactyly, FGFR3-Associated Craniosynostosis, and Crouzon, Jackson-Weiss, Apert, Pfeiffer, and Beare-Stevenson Syndromes

Craniosynostosis Fact Sheet
I.B.I.S. Birth Defects, February 15, 2002
Visitor Comments [for Professionals mainly] [Ukrainian]
Diagnosis ... Differential diagnosis ... Etiology and pathogenesis ... Management ... OMIM number

Fejlôdési rendellenességek
Medical University of Pécs Hungary, 2006
Visitor Comments [Hungarian]
Craniostenosis, craniosynostosis ...
Craniostenosis, craniosynostosis ... Myelo- és encephalokélék ... Platybasia ...


Last Updated: 2007/08/15


American Medical Association