Omni-Net Ukraine Birth Defects Prevention Program
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International Birth Defects Information Systems Omni-Net Ukraine Birth Defects Prevention Program
Mission: Amelioration, Prevention and Genetic Counseling concerning Birth Defects, Genetic Disorders, Congenital Malformations, Anomalies and Developmental Disorders

Humanities Resources Pregnancy
  • Establish birth defects surveillance systems, treatment and prevention programs based on international standards.
  • Prevent developmental disabilities related to institutionalizations with emphasis on early interventions.
  • Promote creation of parental support groups.
  • Promote medical education, training and research through national and international partnerships.
  • Estabilish electronic information resources for dissemination and tele-consultations.
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Birth Defects (BD) in Ukraine

Lyubov Yevtushok, M.D.
Medical Coordinator
Omni-Net Ukraine Birth Defects Prevention Program

Population Based Surveillance
Rivne and Volyn Oblasts
Year 2011

Live births (L)   31634  
Stillbirths (S) 183
Total births   31817  
Number of terminations of pregnancy (ToP) for birth defects (1)


Birth Defects Number of cases Rates per 10000
Livebirths Stillbirths ToP* L+S L+S+ToP
Anencephaly (A) 0 4 16 1.26 6.29
Spina bifida (A) 22 1 18 7.23 12.89
Encephalocele (A) 1 0 5 0.31 1.89
Microcephaly (2) 19 1 NR 6.29 NR
Holoprosencephaly 4 2 NR 1.89 NR
Hydrocephaly 13 1 NR 4.40 NR
Anophthalmos (2) 1 0 NR 0.31 NR
Microphthalmos (2) 3 0 NR 0.94 NR
Unspecified Anophthalmos / Microphthalmos 0 0 NR 0.00 NR
Anotia 0 0 NR 0.00 NR
Microtia 6 0 NR 1.89 NR
Unspecified Anotia / Microtia 0 0 NR 0.00 NR
Transposition of great vessels 13 0 NR 4.09 NR
Tetralogy of Fallot 4 0 NR 1.26 NR
Hypoplastic left heart syndrome 12 1 NR 4.09 NR
Coarctation of aorta 7 0 NR 2.20 NR
Choanal atresia, bilateral 0 0 NR 0.00 NR
Cleft palate without cleft lip 25 0 NR 7.86 NR
Cleft lip with or without cleft palate 22 0 NR 6.91 NR
Oesophageal atresia / stenosis with or without fistula 8 0 NR 2.51 NR
Small intestine atresia / stenosis 4 1 NR 1.57 NR
Anorectal atresia / stenosis 10 0 NR 3.14 NR
Undescended testis (36 weeks of gestation or later) 113 0 NR 35.52 NR
Hypospadias (3) 9 0 NR 2.83 NR
Epispadias 0 0 NR 0.00 NR
Indeterminate sex 1 0 NR 0.31 NR
Renal agenesis 3 0 NR 0.94 NR
Cystic kidney 13 1 NR 4.40 NR
Bladder exstrophy 0 0 NR 0.00 NR
Polydactyly, preaxial 12 0 NR 3.77 NR
Total Limb reduction defects (include unspecified) 18 0 NR 5.66 NR
           Transverse 10 0 NR 3.14 NR
           Preaxial 2 0 NR 0.63 NR
           Postaxial 0 0 NR 0.00 NR
           Intercalary 1 0 NR 0.31 NR
           Mixed 1 0 NR 0.31 NR
           Unspecified 0 0 NR 0.00 NR
Diaphragmatic hernia 6 2 NR 2.51 NR
Omphalocele 2 1 NR 0.94 NR
Gastroschisis 2 0 NR 0.63 NR
Unspecified Omphalocele / Gastroschisis 0 0 NR 0.00 NR
Prune belly sequence 0 0 NR 0.00 NR
Trisomy 13 (4) 0 0 NR 0.00 NR
Trisomy 18 (5) 1 0 NR 0.31 NR
Down syndrome, all ages (include age unknown) (2, 6) 57 0 NR 17.91 NR
           <20 0 0 NR 0.00 NR
           20-24 8 0 NR 7.87 NR
           25-29 10 0 NR 9.83 NR
           30-34 16 0 NR 26.11 NR
           35-39 8 0 NR 30.18 NR
           40-44 14 0 NR 243.48 NR
           45+ 1 0 NR 357.14 NR
           unknown 0 0 NR 0.00 NR


NR = Data not reported or not available.
* = Terminations of Pregnancy.
(1) Number of terminations of pregnancy (ToP) for birth defects is not reported, except for NTD.
(2) Clinical diagnosis only; with photodocumentation or measurements documented.
(3) Includes penile, scrotal, and perineal hypospadias only.
(4) Two ToPs with Trisomy 13 confirmed by amniocentesis (1 - maternal age 27 years, fetal karyotype 46,XX,der(13;14)(q10;q10),+13; 2 - maternal age 34 years, fetal karyotype 47,XY+13).
(5) One ToP with Trisomy 18 confirmed by amniocentesis (maternal age 25 years, fetal karyotype 47,XX+18).
(6) Six ToPs with Down syndrome confirmed by amniocentesis (1 - maternal age 18 years, fetal karyotype 47,XY+21; 2 - maternal age 27 years, fetal karyotype 47,XX+21; 3 - maternal age 35 years, fetal karyotype 47,XX+21; 4 - maternal age 38 years, fetal karyotype 47,XY+21; 5 - maternal age 40 years, fetal karyotype 47,XX+21; 6 - maternal age 43 years, fetal karyotype 47,XY+21).
(A) More details in NTD table

Data reported to International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR).




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