Omni-Net Ukraine Birth Defects Prevention Program
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International Birth Defects Information Systems Omni-Net Ukraine Birth Defects Prevention Program
Mission: Amelioration, Prevention and Genetic Counseling concerning Birth Defects, Genetic Disorders, Congenital Malformations, Anomalies and Developmental Disorders

Humanities Resources Pregnancy
  • Establish birth defects surveillance systems, treatment and prevention programs based on international standards.
  • Prevent developmental disabilities related to institutionalizations with emphasis on early interventions.
  • Promote creation of parental support groups.
  • Promote medical education, training and research through national and international partnerships.
  • Estabilish electronic information resources for dissemination and tele-consultations.
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Birth Defects (BD) in Ukraine

Lyubov Yevtushok, M.D.
Medical Coordinator
Omni-Net Ukraine Birth Defects Prevention Program

Population Based Surveillance
Rivne and Volyn Oblasts
Year 2006

Live births (L) 29038
Stillbirths (S) 148
Total births 29186
Number of terminations of pregnancy (ToP) for birth defects (1) NR


Birth Defects Number of cases Rates * 10000
Livebirths Stillbirths ToP* L+S L+S+ToP
Anencephaly (A) 0 2 19 0.69 7.23
Spina bifida (A) 8 3 19 3.79 10.33
Encephalocele (A) 1 1 4 0.69 2.07
Microcephaly (2) 11 0 NR 3.79 N.A.
Arhinencephaly / Holoprosencephaly 1 0 NR 0.34 N.A.
Hydrocephaly 11 5 NR 5.51 N.A.
Total Anophthalmos / Microphthalmos
(include unspecified) (2)
3 0 NR 1.03 N.A.
     Anophthalmos (2) 0 0 NR 0.00 N.A.
     Microphthalmos (2) 3 0 NR 1.03 N.A.
Total Anotia / Microtia
(include unspecified)
8 0 NR 2.76 N.A.
     Anotia 1 0 NR 0.34 N.A.
     Microtia 7 0 NR 2.41 N.A.
Transposition of great vessels 14 0 NR 4.82 N.A.
Tetralogy of Fallot 6 1 NR 2.41 N.A.
Hypoplastic left heart syndrome 3 0 NR 1.03 N.A.
Coarctation of aorta 2 0 NR 0.69 N.A.
Choanal atresia, bilateral 0 0 NR 0.00 N.A.
Cleft palate without cleft lip 12 0 NR 4.13 N.A.
Cleft lip with or without cleft palate 27 0 NR 9.30 N.A.
Oesophageal atresia / stenosis with or without fistula 8 0 NR 2.76 N.A.
Small intestine atresia / stenosis 4 0 NR 1.38 N.A.
Anorectal atresia / stenosis 4 0 NR 1.38 N.A.
Undescended testis (36 weeks of gestation or later) 116 0 NR 39.95 N.A.
Hypospadias (3) 12 0 NR 4.13 N.A.
Epispadias 1 0 NR 0.34 N.A.
Indeterminate sex 2 0 NR 0.69 N.A.
Renal agenesis 1 0 NR 0.34 N.A.
Cystic kidney 7 1 NR 2.76 N.A.
Bladder exstrophy 2 0 NR 0.69 N.A.
Polydactyly, preaxial 15 0 NR 5.17 N.A.
Total Limb reduction defects (include unspecified) 8 1 NR 3.10 N.A.
     Transverse 5 0 NR 1.72 N.A.
     Preaxial 0 0 NR 0.00 N.A.
     Postaxial 1 0 NR 0.34 N.A.
     Intercalary 1 1 NR 0.69 N.A.
     Mixed 1 0 NR 0.34 N.A.
Diaphragmatic hernia 4 1 NR 1.72 N.A.
Total Abdominal wall defects (include unspecified) 5 2 NR 2.41 N.A.
     Omphalocele 1 1 NR 0.69 N.A.
     Gastroschisis 4 1 NR 1.72 N.A.
Prune belly sequence 0 0 NR 0.00 N.A.
Trisomy 13 (2) 1 0 NR 0.34 N.A.
Trisomy 18 (2)  0 0 NR 0.00 N.A.
Down syndrome, all ages (include age unknown) (2, 4) 43 1 NR 15.15 N.A.
     <20 2 0 NR 7.74 N.A.
     20-24 11 0 NR 10.01 N.A.
     25-29 10 0 NR 11.20 N.A.
     30-34 4 0 NR 8.86 N.A.
     35-39 8 0 NR 45.30 N.A.
     40-44 6 1 NR 186.17 N.A. 
     45+ 2 0 NR 689.66 N.A.


N.A. = not available
* = Terminations of Pregnancy
(1) Number of terminations of pregnancy (ToP) for birth defects is not reported (NR), except for NTD
(2) Clinical diagnosis only; with photodocumentation or measurements documented
(3) Includes penile, scrotal, and perineal hypospadias only
(4) Two ToPs with Down Syndrome confirmed by amniocentesis (maternal age 23 and 36 years; karyotype of fetuses - 47,XX,+21 and 47,XY,+21 respectively)
(A) More details in NTD table

Data reported to International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR).




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